Event in Life

Sometimes in life there are moments that seem to change the direction of our lives. This year alone we have had a couple.  In December we found out Kamiree had apraxia of speech and we knew we had to go somewhere to get her some help so that has been our focus.  Today was another one of those moments.  We found out our daughter is having seizures, and not just a few, numerous.
Yesterday when we checked in to the Children's Hospital we were told that if they didn't see any seizure activity we would only be in a night.  So this morning when a lady came in at 9 am to start taking Kamiree's electrodes off we thought all was good.  I put her in the bath, and all you would see is smiles.  My mom came in to the bathroom to let me know that the doctor was there so I stepped out happy as can be.  He looked at me and told me that Kamiree's EEG is abnormal.  I just kept staring at him thinking that he accidentally said the wrong thing...waiting for him to fix it.  He did not but continued by telling me that she is having numerous or frequent seizures in the left lobe which houses her language and comprehension.  It could be one of 2 things, either the seizures and apraxia of speech are correlating or they are working independently in which case she has another thing to add to her long list of not being a "normal" child in today's world.  Phew...okay so I was acting like all was good, hoping he would just go so I could just cry, and he did go...and I did cry.
We were checked out with the instructions to call next week and talk to our neurologist to set up a repeat MRI, to see the damage in there, and then they will figure out a game plan for our sweet child Kamiree who is looking up a mountain with no top.  Even though she doesn't know it, I am seeing it for her.
So even though this move to Denver has been stressful, taking a step back, God planned it.  Now we will be in our "hometown" while they figure out what drugs work for Kamiree.  I don't want to smile right now, just cry...but I know my heavenly Father has a plan, and this is it.  He loves Kamiree.  And for right now, that's what I'm holding on to.

Next chapter is fast approaching!

So it's July!  And while that is not a big deal to some people, to me it means sadness and happiness all in one.  As we pack of to head to Denver at the end of this month (well Chris at least, the rest of us August 12th), I can't help but shed some tears.  The emotional thought of leaving my family who has been so much help is almost excruciating to me.  I have relied on my mom to take Kamiree at least once a week for a break for both of us.  It has been a blessing to have that break and to be able to just breathe.  All the kids get a "break" from me quite often and it's been nice for all of us!  Again, the reason it is hard to leave.  We have slowly been packing up our house realizing how much junk we have :)  Maybe everybody should move every 5 years so they can cleanse their houses haha!  Anyways, this summer has been a good one for Kamiree for the most part!  Her speech has really come along!  She is trying to say 3 word sentences quite a bit now!  She still has fits, and to be honest we have been pretty lax on the gluten free diet this summer.  It is so hard, but really it's no excuse.  I can't wait to see what 5 days of speech will do for her!  She did get put on SSI disability so I signed her up with a speech therapist that does hippotherapy.  I can't wait for her to have one day a week on a horse still learning but not knowing it necessarily :)  As hard as this is, I know that at the end we will be happy with whatever outcome it might be.  I know she will improve, so that's what matters.  I want her to have a normal life and be able to be independent.  This will take lots of planning on our part to meet that goal.  Thank you for everybody that has supported us thus far.  This is a journey like no other for us!