Kamiree is doing good and bad. See why it's a rollercoaster? ;) This syndrome is so frustrating because she will have the comprehension of a 2 1/2 year old and then in the next minute of a 5 year old. Her brain is constantly having problems and I can't even imagine what she feels like. I get so mad when I can't remember a word when I'm trying to tell a story, which I'm sure most of you have had, and she has this all day long. Except it is whole thoughts. Her speech therapist says it's like she had a stroke, but without even really learning the language first. That's like pretty much saying "Good Luck Kamiree." Good thing I don't believe in luck, but the power of God to heal or not heal. I'm content either way most of the time. Even though nightly I cry out to Him to please heal her, please let her understand us, please let her know You, and please help her not be so frustrated. Just a few simple requests right?
Yesterday was a day when I could say, wow I'm happy! I am trying not to base my happiness on how Kamiree acts or doesn't act, but I have to tell you that that in itself a task. I picked her up from school early to bring her to speech therapy and she kept saying, "No Bri." Which that is her speech therapist. I kept telling her we were going to see Bri, and she kept replying back no no no no. Well, we got there and she jumped out of the car and went in by herself and 30 minutes later came back out with Bri and told me she was happy. Yes, so am I dear child I thought in my head!
We hurried home to eat dinner quickly and head out for AWANA. Kamiree has never really liked being around a lot of people, and well our church is huge so we figured she probably would never stay by herself. We walked into the church and she ran into the Kindergarten Sparks room and told me to leave. Awesome! Feeling good about this day!! We came back 1 1/2 later to find her in a room with 12 words on the board and 2 girls signing the words and saying them...John 3:16. Kamiree was trying her hardest to do the verst so they gave her a vest and book and she skipped happily out of the room to find Kaden and hold his hand all the way to the car singing. I kept telling Chris, "Wow, I'm happy, she's happy!" You have to understand, this doesn't happen very often at all so we take these small blessings and smile...which sometimes doesn't happen for days.
We get home, check email, and there it is...the bad part of the day...Kamiree had a rough day at school, screaming, running out of the classroom, drawing on tables. I just don't get it. I ask her about it, and she tells me she doesn't like school. Actually, I was pretty proud of her for saying a complete sentence, haha! But, sad that it's so hard for her. Motor planning is tough for our little girl, and just another thing that frustrates her in this life.
