We have decided to stay in Denver so that Kamiree can continue getting better and we can stop putting so much pressure on her to get better so we can go "home". We realized we were doing that unintentionally so we decided to quit telling her we will go home when she can talk and just tell her that we are here because mommy and daddy like it here. Chris has gotten a promotion as vice principal at the school he works at so honestly there are a lot of positives here. It's also better to just not make plans either since we really don't know what will happen even in the next 6 months. Kamiree's deaf school is currently building a new school here so she is excited to get to go to it. Lucky for us, it is on this side of town so it doesn't change my hour drive in the morning to even longer!!
This is Kamiree over Christmas in Wyoming. The local paper took a picture of her :)
Kamiree also talks ALL THE TIME!!! Last night I was taking a bath and she walked in and sat and talked my ear off. She is a very social person so it was about all the girl fights she got in but she had said sorry and ect.... Looking back I could of not imagined we would be here at this time. I didn't think she was ever going to talk to me or we would have a relationship. Instead, she is a "normal" girl that loves having friends, and actually has started to like her family :) Not only that, but she fits in perfectly playing any kind of sport and loves basketball! The opportunities she is allowed here are significant and I believe it is helping in her recovery.
Kamiree gets another EEG in early June and then we see the neurologist at the end of the month. In the last visit in February he said he wanted to take her off the lamictal but I think we are going to fight it. I'm so scared that as soon as we take her off of it she will regress and everything we all have worked on for 22 months will be gone. That would be devastating! Since this syndrome is only supposed to last until puberty, I hope that we can just keep her on it until then. The thing with the neurologist is he has admitted that there isn't a lot of medical journals out there on her rare syndrome so everything they do is a guessing game. I just wish it wasn't our daughter they are guessing with :(
Kamiree sitting on Uncle Ryan's lap before we headed to the AFC Championship!
Everything is going well down here. We go through stages of the kids wanting to move back to Wyoming immediately to them saying they love it here. There are still lots of ups and downs with Kamiree. When she gets gluten she still becomes a crazy girl which is good to know what sets her off. She can still get very angry at us and then very happy. Big mood swings for this little girl, but I have heard some of it is kind of normal for a 7 year old girl so we usually give her the benefit of the doubt. We thank you all for your prayers, and please don't stop praying! We have gotten to know a good group from our church and made good friends through other places so we don't feel so lonely anymore down here. Thank you everyone!!
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